The Children’s Palliative Care Coalition of Michigan is a collaboration of clinicians, caregivers, advocates and healthcare institutions, who are dedicated to advancing knowledge, sharing resources and improving care for children with chronic, complex or life-limiting illness.
Our mission is to provide resources for, and to advocate for, medical professionals, volunteers and families caring for children with life-limiting illnesses, and to ensure the availability of compassionate, comprehensive care across the State of Michigan.
Our mission is to provide resources for medical professionals, volunteers and families caring for children with life-limiting illnesses, and to ensure the availability of compassionate, comprehensive care across the State of Michigan.
Families and children living with life-limiting conditions are entitled to education about their disease, information about risks and benefits of treatment, and likely outcomes. This education and guidance is an obligation of the medical community.
Families and children living with life-limiting or chronically disabling conditions should be encouraged to become partners with the healthcare team in making decisions and in planning treatments for the child.
The extended family suffers, as well as the child, when a life threatening illness or a chronic disorder strikes our families. Patients, and their extended families, are entitled to compassionate and expert medical care, effective control of pain and physical complaints, and emotional and spiritual support.
Children should know what is happening to them. Whenever possible, even very young children should be involved in discussions about their conditions and have a voice in the decision-making process.
Quality of life should be maintained at the highest possible level when death cannot be avoided, and when death occurs, it should be made peaceful and dignified.
Support for the family must be available after death.
