Advancing compassionate, comprehensive care of children with life-limiting conditions.
With the vaccination rate increasing and the slowing down of COVID19, we're hopeful to hold our conference in person this year. Plans are to also webcast the entire program, so those unable to travel to East Lansing can participate. Stay tuned for further details!
The Coalition is pleased to host two virtual sessions designed for healthcare providers and families to learn how to advocate and maximize the impact of their "stories" to Michigan lawmakers, stakeholders, and the media. It is imperative to tell these stories - stories of struggles of caring for children with chronic and medically complex illnesses - to "Let Our Voices Be Heard". This training session will help all attendees overcome the barriers to effective grassroots advocacy by demystifying the legislative process, knowing when and why to act, and learning how to tell their stories with concise, persuasive messages to legislators, stakeholders, and members of the media.
What we do
How you can help
Learning that your child has a life-limiting illness can be devastating. It can be confusing and overwhelming to begin to understand what you may need medically and emotionally. Navigating the system along with your own feelings can be challenging and frustrating. Many parents want to seek out as much information as possible.
Check out our updated Resource Page!
We work to improve access to and quality of palliative care for children suffering life-limiting conditions. We aim to make it easier for families to find the guidance and support they need when navigating the complexities of caring for their child. More...
Become a member, attend our events, or donate now to support our important work and strengthen our efforts to collaborate and improve pediatric palliative care services. More...
A SAD LOSS TO OUR COMMUNITY
It is with deep sadness that we announce the passing of our co-founder and administrator, Richard Graham-Yooll.
Please read our tribute to Richard to find out more about who he was and what he did for our community.