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Advancing compassionate, comprehensive care of children with life-limiting conditions.

2022 Fall Conference
Friday, November 11, 2022
East Lansing, MI

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Can't attend, but would like to connect with your friends and colleagues? You're invited to join us at our Happy Hour following the conference at 5 pm! Send us an email if you're interested!

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Register for January session at
a greatly reduced cost

Mood Lifter's Art Auction/fund raiser in August earned enough for the MI Children's Palliative Care Coalition to sponsor a group for Mood Lifters--Palliative Parents Edition. The program helps you care for yourself, while you care for your family.

The 15-week program  will start on Wednesday October 19 and end on February 1.   Any parent of a child with serious illness or a chronic complex condition in Michigan is eligible.

 

Meetings are held remotely via Zoom so that you can join from wherever you are. Due to generous sponsorship, this 15-week group sessions will be provided at a cost of $25, instead of the regular $249 registration fee. 

For participants unable to pay $25, a limited number of scholarships are available. Email info@moodlifters.com and ask about a palliative care scholarship.

In the News

Pediatric Palliative Care - Billing and Business Planning Toolkit
CAPC has released a Pediatric Program Billing and Business Planning with new resources that address the unique needs of pediatric patients. The new Pediatric Palliative Care: Billing and Business Planning toolkit provides guidance for designing a business plan and budget, navigating concurrent hospice care, and utilizing effective billing practices. Many resources in this toolkit are open to all.

University of Michigan's Mott named first ChildKind Certified Hospital in State

“Being the first ChildKind certified hospital in Michigan is a public testament to the incredible pediatric pain care that Mott provides and once again makes us stand out amongst our peers,” chief nursing officer at Mott and Von Voigtlander Women’s Hospital, Kelly Baird-Cox, said in a statement. “This exceptional achievement would not be possible without all of our teams working together to prevent and treat pediatric pain in new and innovative ways.”

 

Pediatric Palliative Care Underutilized in United States

Pediatric palliative care “is used to provide children suffering from life-impacting illnesses with specialized treatment, improving their quality of life.” But a recent study found that 1 in 5 hospitals are lacking access to such programs.

Terminally Ill Pediatric Patients Need Greater Access to Advance Care Planning
this recent Hospice News article about the need for pediatric patients to have access to advance care plans, Kristin James, executive director of the Greater Illinois Pediatric Palliative Care Coalition states that, “Talking to families about their options involves providers coming together and speaking the same language when it comes to advance care planning.”

 

Dying in Your Mother's Arms

Dr. Nadia Tremonti, Coalition Board Member, shares her work to make end of life better for families dealing with terminally ill children in this award winning documentary. 

View Other News Here

 

Helpful resources

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Learning that your child has a life-limiting illness can be devastating. It can be confusing and overwhelming to begin to understand what you may need medically and emotionally. Navigating the system along with your own feelings can be challenging and frustrating. Many parents want to seek out as much information as possible.

Check out our updated Resource Page

What we do

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How you can help

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We work to improve access to and quality of palliative care for children suffering life-limiting conditions. We aim to make it easier for families to find the guidance and support they need when navigating the complexities of caring for their child. More...

Become a member, attend our events, or donate now to support our important work and strengthen our efforts to collaborate and improve pediatric palliative care services. More...

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