Children's Palliative Care
Coalition of Michigan
Our mission is to provide resources for medical professionals, volunteers and families caring
for children with complex and life-limiting illnesses, and to ensure the availability of compassionate, comprehensive care across the State of Michigan.
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CPCC Launches Second Webinars
In its Series:
Pediatric Palliative Care Partnerships
The second webinar in this series - Recreational Therapies, the Healing Power of Play - will be held on June 15 from noon - 1 pm. By participating in this event, participants will be able to:
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Identify opportunities in Michigan for seriously ill children to participate in safe and beneficial recreational programs.
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Know how families and colleagues can refer families for these and related programs.
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Discuss the benefits of recreational therapy for children with serious and life-limiting illnesses and conditions.
Helpful resources
Learning that your child has a life-limiting illness can be devastating. It can be confusing and overwhelming to begin to understand what you may need medically and emotionally. Navigating the system along with your own feelings can be challenging and frustrating. Many parents want to seek out as much information as possible.
Check out our updated Resource Page!
What we do
How you can help
We work to improve access to and quality of palliative care for children suffering life-limiting conditions. We aim to make it easier for families to find the guidance and support they need when navigating the complexities of caring for their child. More...
Become a member, attend our events, or donate now to support our important work and strengthen our efforts to collaborate and improve pediatric palliative care services. More...
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2023 Pediatric Palliative Care Webinar Series
There continues to be significant data highlighting the workforce shortage in pediatric palliative care. As the number of children with chronic, complex and life-limiting illness continues to increase, the training needs of physicians and healthcare teams has increased as well. Many adult providers, family practitioners and smaller hospice teams have identified training as the leading barrier to their ability to provide end-of-life care to children. Larger systems with new or established pediatric palliative care (PPC) teams often struggle to find time for education or funding to support professional development.
A team from Pennsylvania’s Pediatric Palliative Care Coalition (PPCC), Greater Illinois Pediatric Palliative Care Coalition (GIPPCC), Children’s Hospice & Palliative Care Coalition of California (CHPCC), and the CSU Shiley Haynes Institute for Palliative Care have collaborated to offer the PPC Webinar Series to raise the visibility of pediatric palliative care and to build clinicians’ competencies and confidence in providing care to children.
In the News
Pediatric Palliative Care - Billing and Business Planning Toolkit
CAPC has released a Pediatric Program Billing and Business Planning with new resources that address the unique needs of pediatric patients. The new Pediatric Palliative Care: Billing and Business Planning toolkit provides guidance for designing a business plan and budget, navigating concurrent hospice care, and utilizing effective billing practices. Many resources in this toolkit are open to all.
University of Michigan's Mott named first ChildKind Certified Hospital in State
“Being the first ChildKind certified hospital in Michigan is a public testament to the incredible pediatric pain care that Mott provides and once again makes us stand out amongst our peers,” chief nursing officer at Mott and Von Voigtlander Women’s Hospital, Kelly Baird-Cox, said in a statement. “This exceptional achievement would not be possible without all of our teams working together to prevent and treat pediatric pain in new and innovative ways.”
Pediatric Palliative Care Underutilized in United States
Pediatric palliative care “is used to provide children suffering from life-impacting illnesses with specialized treatment, improving their quality of life.” But a recent study found that 1 in 5 hospitals are lacking access to such programs.
Terminally Ill Pediatric Patients Need Greater Access to Advance Care Planning
this recent Hospice News article about the need for pediatric patients to have access to advance care plans, Kristin James, executive director of the Greater Illinois Pediatric Palliative Care Coalition states that, “Talking to families about their options involves providers coming together and speaking the same language when it comes to advance care planning.”