This year, for the first time, the Childrens Palliative Care Coalition of Michigan will participate in Giving Tuesday on Nov. 28! This is a global day of giving designed to promote an influx of philanthropy, citizen engagement, and support for communities and nonprofits around the world. We hope you consider supporting the mission and work of our coalition.
CPCC is a 501C organization whose mission is to provide resources for medical professionals, volunteers and families caring for children with life-limiting illnesses, and to ensure the availability of compassionate, comprehensive care across the State of Michigan. There are two options to consider when giving: donating to the Legacy Fund - help a family challenged with caring for a medically complex child or contributing to further the mission of the coalition.
Your support is greatly appreciated! Click this link to learn more or donate today! https://www.childpalliative.org/donations
2023 Pediatric Palliative Care Webinar Series
There continues to be significant data highlighting the workforce shortage in pediatric palliative care. As the number of children with chronic, complex and life-limiting illness continues to increase, the training needs of physicians and healthcare teams has increased as well. Many adult providers, family practitioners and smaller hospice teams have identified training as the leading barrier to their ability to provide end-of-life care to children. Larger systems with new or established pediatric palliative care (PPC) teams often struggle to find time for education or funding to support professional development.
A team from Pennsylvania’s Pediatric Palliative Care Coalition (PPCC), Greater Illinois Pediatric Palliative Care Coalition (GIPPCC), Children’s Hospice & Palliative Care Coalition of California (CHPCC), and the CSU Shiley Haynes Institute for Palliative Care have collaborated to offer the PPC Webinar Series to raise the visibility of pediatric palliative care and to build clinicians’ competencies and confidence in providing care to children.
In the News
Children and their families have limited access to pediatric hospice care in many areas in the US. “We developed these inpatient units for families to have a place to just be a family while seeking pain and symptom management,” Holly Davis, assistant vice president of clinical services of VIA Health Partners said. “To not offer these services is an injustice to families experiencing serious illness.”
Pediatric Palliative Care - Billing and Business Planning Toolkit
CAPC has released a Pediatric Program Billing and Business Planning with new resources that address the unique needs of pediatric patients. The new Pediatric Palliative Care: Billing and Business Planning toolkit provides guidance for designing a business plan and budget, navigating concurrent hospice care, and utilizing effective billing practices. Many resources in this toolkit are open to all.
University of Michigan's Mott named first ChildKind Certified Hospital in State
“Being the first ChildKind certified hospital in Michigan is a public testament to the incredible pediatric pain care that Mott provides and once again makes us stand out amongst our peers,” chief nursing officer at Mott and Von Voigtlander Women’s Hospital, Kelly Baird-Cox, said in a statement. “This exceptional achievement would not be possible without all of our teams working together to prevent and treat pediatric pain in new and innovative ways.”
Pediatric palliative care “is used to provide children suffering from life-impacting illnesses with specialized treatment, improving their quality of life.” But a recent study found that 1 in 5 hospitals are lacking access to such programs.
Terminally Ill Pediatric Patients Need Greater Access to Advance Care Planning
this recent Hospice News article about the need for pediatric patients to have access to advance care plans, Kristin James, executive director of the Greater Illinois Pediatric Palliative Care Coalition states that, “Talking to families about their options involves providers coming together and speaking the same language when it comes to advance care planning.”
Dr. Nadia Tremonti, Coalition Board Member, shares her work to make end of life better for families dealing with terminally ill children in this award winning documentary.
Learning that your child has a life-limiting illness can be devastating. It can be confusing and overwhelming to begin to understand what you may need medically and emotionally. Navigating the system along with your own feelings can be challenging and frustrating. Many parents want to seek out as much information as possible.
Check out our updated Resource Page!
What we do
How you can help
We work to improve access to and quality of palliative care for children suffering life-limiting conditions. We aim to make it easier for families to find the guidance and support they need when navigating the complexities of caring for their child. More...
Become a member, attend our events, or donate now to support our important work and strengthen our efforts to collaborate and improve pediatric palliative care services. More...