CPCC Launches Series of Webinars:
Pediatric Palliative Care Partnerships
Beginning in April, CPCC will present a series of opportunities to educate and inform interested people about support services in pediatric palliative care and show the value of these programs in PPC.
The first webinar - Building Our Unique Melody: Music Therapy with Children in Palliative Care, Hospice, and Bereavement - will be held on April 25 from noon - 1 pm. By participating in this event, participants will be able to:
identify the various aspects of the definition of music therapy and how it relates to palliative, hospice, and bereavement care;
Increase understanding of music therapy within the pediatric setting at a children’s hospital including topics of general music therapy practice, music therapy interventions, and end of life support;
Recognize how music therapy interventions can be utilized to support hospice patients and their families. and,
Develop an understanding of how children uniquely present grief and how clinical music therapy plays a role in addressing children's need for self-expression and coping support..
One hour of CE* for nursing and social work is available
*Professional registrations are eligible for CEs; Family and Group Registrations are not eligible.
Presenters include Heather Dean, Rachael Lawrence-Lupton, and Maleea Roy. Please click on their names to read their bios.
Register below. Please note: scholarships are available if needed; just send an email to email@example.com
Webinar link will be emailed on April 21.
Family Center for Children and Youth with Special Health Care Needs
Bereavement Parent Mentor Training
March 28-29, 2023
9:00 am - 12:30 pm
This Bereavement Parent Mentor Training is for parents who:
Have had a child with a special need or medical diagnosis
Have experienced the loss of their child at least 13 months ago
Would like to help other parents that are looking for support in their journey with grief
All participants will receive a $50 gift card along with another gifts upon completion of the training.
If you would like more information on this training session to become a Bereavement Parent Mentor or would like more information about the Family Center’s support and resources for families, please call 517-241-7630.
2023 Pediatric Palliative Care Webinar Series
There continues to be significant data highlighting the workforce shortage in pediatric palliative care. As the number of children with chronic, complex and life-limiting illness continues to increase, the training needs of physicians and healthcare teams has increased as well. Many adult providers, family practitioners and smaller hospice teams have identified training as the leading barrier to their ability to provide end-of-life care to children. Larger systems with new or established pediatric palliative care (PPC) teams often struggle to find time for education or funding to support professional development.
A team from Pennsylvania’s Pediatric Palliative Care Coalition (PPCC), Greater Illinois Pediatric Palliative Care Coalition (GIPPCC), Children’s Hospice & Palliative Care Coalition of California (CHPCC), and the CSU Shiley Haynes Institute for Palliative Care have collaborated to offer the PPC Webinar Series to raise the visibility of pediatric palliative care and to build clinicians’ competencies and confidence in providing care to children.
In the News
Pediatric Palliative Care - Billing and Business Planning Toolkit
CAPC has released a Pediatric Program Billing and Business Planning with new resources that address the unique needs of pediatric patients. The new Pediatric Palliative Care: Billing and Business Planning toolkit provides guidance for designing a business plan and budget, navigating concurrent hospice care, and utilizing effective billing practices. Many resources in this toolkit are open to all.
University of Michigan's Mott named first ChildKind Certified Hospital in State
“Being the first ChildKind certified hospital in Michigan is a public testament to the incredible pediatric pain care that Mott provides and once again makes us stand out amongst our peers,” chief nursing officer at Mott and Von Voigtlander Women’s Hospital, Kelly Baird-Cox, said in a statement. “This exceptional achievement would not be possible without all of our teams working together to prevent and treat pediatric pain in new and innovative ways.”
Pediatric Palliative Care Underutilized in United States
Pediatric palliative care “is used to provide children suffering from life-impacting illnesses with specialized treatment, improving their quality of life.” But a recent study found that 1 in 5 hospitals are lacking access to such programs.
Terminally Ill Pediatric Patients Need Greater Access to Advance Care Planning
this recent Hospice News article about the need for pediatric patients to have access to advance care plans, Kristin James, executive director of the Greater Illinois Pediatric Palliative Care Coalition states that, “Talking to families about their options involves providers coming together and speaking the same language when it comes to advance care planning.”
Dying in Your Mother's Arms
Dr. Nadia Tremonti, Coalition Board Member, shares her work to make end of life better for families dealing with terminally ill children in this award winning documentary.
View Other News Here
Learning that your child has a life-limiting illness can be devastating. It can be confusing and overwhelming to begin to understand what you may need medically and emotionally. Navigating the system along with your own feelings can be challenging and frustrating. Many parents want to seek out as much information as possible.
Check out our updated Resource Page!
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How you can help
We work to improve access to and quality of palliative care for children suffering life-limiting conditions. We aim to make it easier for families to find the guidance and support they need when navigating the complexities of caring for their child. More...
Become a member, attend our events, or donate now to support our important work and strengthen our efforts to collaborate and improve pediatric palliative care services. More...