National Resources

Pediatric Palliative Care: Billing and Business Planning

CAPC has released a Pediatric Program Billing and Business Planning with new resources that address the unique needs of pediatric patients. The new Pediatric Palliative Care: Billing and Business Planning toolkit provides guidance for designing a business plan and budget, navigating concurrent hospice care, and utilizing effective billing practices. Many resources in this toolkit are open to all.

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The International Children’s Palliative Care Network (ICPCN)

A worldwide network of individuals and agencies working with children and young people with life-limiting and life-threatening conditions.

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National Hospice and Palliative Care Organization (NHPCO)

Has published Standards of Practice for Pediatric Hospice and Palliative Care Programs, and provides a number of useful resources for families and caregivers.

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The Center to Advance Palliative Care (CAPC)

Provides essential tools, training, technical assistance, and connection for all clinicians caring for people with serious illness. They have published guidance on designing a pediatric palliative care program.

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Courageous Parents Network (CPN)

A destination created by parents, for parents, to support, guide and strengthen families as they care for a seriously ill child. Here you will find wisdom from fellow parents and pediatric care providers to help you be the best parent you can be to your child and children—and get through each moment

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Stepping Stones for Stella

Provides Buggies to children with disabilities to ensure they experience the great outdoors to its fullest. The sturdy, light-weight, all-terrain Buggies allow easy access to all types of outdoor environments that may require moving across sand, gravel, dirt, grass and even snow. Components are made of PVC pipe material, rubber and stainless steel and are equipped with WheelEEZ® Balloon Wheels.

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ArchAngels

A national movement at platform that is reframing how caregivers are seen, honored, and supporter using a combination of data and stories.

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Coalition Against Pediatric Pain

An organization dedicated to supporting and uniting families affected by pediatric
pain. Also provides links to other organizations whose goal is spread joy and happiness to chronically ill kids.

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UnitedHealthcare Children’s Foundation

Their mission is to improve children’s lives and help families gain access to the care they need through medical grants.

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