© 2019. Child Palliative Care Coalition of Michigan

Our guiding principles

Our mission is to provide resources for medical professionals, volunteers and families caring for children with life-limiting illnesses, and to ensure the availability of compassionate, comprehensive care across the State of Michigan.

 

We operate under a set of Guiding Principles:

  • Families and children living with life-limiting conditions are entitled to education about their disease, information about risks and benefits of treatment, and likely outcomes. This education and guidance is an obligation of the medical community.
     

  • Families and children living with life-limiting or chronically disabling conditions should be encouraged to become partners with the healthcare team in making decisions and in planning treatments for the child.
     

  • The extended family suffers, as well as the child, when a life threatening illness or a chronic disorder strikes our families. Patients, and their extended families, are entitled to compassionate and expert medical care, effective control of pain and physical complaints, and emotional and spiritual support.
     

  • Children should know what is happening to them. Whenever possible, even very young children should be involved in discussions about their conditions and have a voice in the decision-making process.
     

  • Quality of life should be maintained at the highest possible level when death cannot be avoided, and when death occurs, it should be made peaceful and dignified.
     

  • Support for the family must be available after death.