A team from Children’s Hospice and Palliative Care Coalition (CHPCC), Pennsylvania’s Pediatric Palliative Care Coalition (PPCC), Greater Illinois Pediatric Palliative Care Coalition (GIPPCC) Jacob’s Heart Children’s Cancer Support Services, Stanford Medical School and the CSU Shiley Institute for Palliative Care have collaborated to offer the PPC Webinar Series to raise the visibility of pediatric palliative care and to build clinicians’ competencies and confidence in providing care to children. Given the success of the webinars and positive feedback, plans for an engaging 2020 series are underway.
There continues to be significant data highlighting the workforce shortage in pediatric palliative care, and, as the as the number of children with chronic, complex and life-limiting illness continues to increase, the training needs of physicians and healthcare teams is burgeoning in pediatrics. Many adult providers, family practitioners and smaller hospice teams have identified training as the leading barrier to their ability to provide end-of-life care to children. Larger systems with new or established pediatric palliative care (PPC) teams often struggle to find time for education or funding to support professional development.
Over 80 health care professionals, families and other interested parties attended our 2019 Conference on November 15 - Palliative Care at the Age Extremes of Childhood: Perinatal Palliative Care / The Challenge of the Young Adult.
We'd particularly like to thank our sponsors - Make a Wish Foundation and the Family Center for donating their time and money to support our conference.
From prenatal to adulthood, our speakers discussed the major transitions of childhood and the medical issues involved. We highlighted the “bookends” of pediatric palliative care with a focus on issues families face in the perinatal period and challenges youth and young adults with life-limiting conditions face as they age out of services for children and teens. We heard from from parents, youth and professionals.
Key speakers included:
Chris Feudtner, MD, PhD, MPH, Director of Research, Pediatric Advanced Care Team (Children's Hospital of Philadephia), Steven D. Handler Endowed Chair in Medical Ethics - Challenges and Opportunities in 21st Century Palliative Care. View Dr. Feudtner's slide presentation.
Tisa Johnson, MD, FAAP, Senior Staff Physician and Medical Director, Center for Autism & Developmental Disabilities (Henry Ford Health System) - Who is helping the Young Adult? View Dr. Johnson's slide presentation.
Cheri Salazar, RN, CPNP (Pediatric Palliative Unit, Sparrow Hospital, Lansing, M
Perinatal Palliative Care
Perinatal Family Panel and Patient and Family Panel - Both panels featured courageous families sharing their heartfelt stories and experiences with perinatal care as well as young adults transitioning from pediatric to adult healthcare.
Were you unable to attend?
Please consider supporting us with a donation in lieu. We depend on public support to advance the availability of better care across the state. The Coalition is a 501(c)3 charity and donations are tax deductible. You can choose a monthly, annual or single donation, and donate in honor of a loved one. Details are on our Donations page.