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Over 80 health care professionals, families and other interested parties attended our 2019 Conference on November 15 - Palliative Care at the Age Extremes of Childhood: Perinatal Palliative Care / The Challenge of the Young Adult. 

We'd particularly like to thank our sponsors - Make a Wish Foundation and the Family Center for donating their time and money to support our conference.


From prenatal to adulthood, our speakers discussed the major transitions of childhood and the medical issues involved. We highlighted the “bookends” of pediatric palliative care with a focus on issues families face in the perinatal period and challenges youth and young adults with life-limiting conditions face as they age out of services for children and teens. We heard from from parents, youth and professionals.

Key speakers included:

  • Chris Feudtner, MD, PhD, MPH, Director of Research, Pediatric Advanced Care Team (Children's Hospital of Philadephia), Steven D. Handler Endowed Chair in Medical Ethics - Challenges and Opportunities in 21st Century Palliative CareView Dr. Feudtner's slide presentation.

  • Tisa Johnson, MD, FAAP, Senior Staff Physician and Medical Director, Center for Autism & Developmental Disabilities (Henry Ford Health System) - Who is helping the Young Adult?  View Dr. Johnson's slide presentation. 

  • Cheri Salazar, RN, CPNP (Pediatric Palliative Unit, Sparrow Hospital, Lansing, M

  • Perinatal Palliative Care

  • Perinatal Family Panel and Patient and Family Panel - Both panels featured courageous families sharing their heartfelt stories and experiences with perinatal care as well as young adults transitioning from pediatric to adult healthcare.


Were you unable to attend?

Please consider supporting us with a donation in lieu. We depend on public support to advance the availability of better care across the state. The Coalition is a 501(c)3 charity and donations are tax deductible. You can choose a monthly, annual or single donation, and donate in honor of a loved one. Details are on our Donations page.

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