Palliative care includes curative treatment!
Particularly in the case of children, palliative care should
always include curative treatment when appropriate ("Concurrent Care").
Hospice may include palliative care,
but palliative care does NOT necessarily mean hospice.
Palliative care is about enabling
the patient to live as fully as possible,
Palliative treatment provides relief from the symptoms and
stress of a serious illness and has the objective of improving quality of life for both the patient and the
family. It is appropriate both at any stage in a serious illness
and also to mitigate
the life-limiting impact of a chronic disability. It
includes the management of curative treatment. Pediatric palliative
care means the special considerations that need to be taken
into account in the treatment of children and young people.
There is the occasion
when palliative treatment is the only option. This is when
the expertise of palliative doctors and nurses tackles the
compassionate challenge of ensuring that neither the symptoms of
the disease nor the side effects of medication cause
There will be times when expert care simply cannot be
accessed. In such cases
are available here to help an attending physician,
or even a non-professional caregiver.
The tradition of hospice in the past was for the payers
(e.g. insurers) not to provide curative
treatment after the patient opted for palliative care. With
children in particular not to provide curative care is
diminished care. It is also is a major deterrent for any
parent in considering palliative care for their child.
The dependence of a high
proportion of child patients upon Medicaid distinguishes
pediatric palliative care from adult. One reason is that
Medicaid often provides wider cover than tradititional
insurance, which has been an incentive for many states to
pursue Medicaid Expansion legislation or Medicaid waivers to widen eligibility for
Many families benefit from the Healthy Michigan Plan, and
state services, like
the Children's Waiver Program.
Michigan Children's Special Healthcare Services plays
a vital role in ensuring reimbursement that might not
normally be available to caregivers.
Palliative care for children, being rare,
requires caregivers to explain more.
Expanding public understanding and professional
knowledge is a major purpose of the Coalition.
This means clarifying the meaning and nature of the term
It is also necessary to keep families and caregivers
aware of services available within the state of
and up to date with advances nationally and